Quality of life of the primary caregiver of a child with neuromotor disorder treated at a specialized rehabilitation center

Abstract

The general objective of the study was to evaluate the quality of life of the primary caregiver of the child with neuromotor disorder, seen at a Specialized Rehabilitation Center in Recôncavo baiano. The research was characterized as cross-sectional, descriptive, with a quantitative approach. The data regarding the contacts of the caregivers and the children's pathologies were obtained through the analysis of medical records. Caregiver data were obtained through questionnaires (socioeconomic and adapted SF-36) online (Google Docs), sent through the messaging application. The main pathology identified was Cerebral Palsy and spasticity was the neuromotor disorder presented in 78% of children. It was observed that there was a greater impairment in physical aspects when referring to pain, whether influencing personal, social and / or leisure aspects, which may be reflecting on the dependence and limitations presented by the child, the demands in care and the low economic level. The study made it possible to broaden the view beyond the patient, since the caregiver's well-being can interfere with the care and rehabilitation process of the child he assists.